000			02115cam a2200313Ii 4500
001			ocn940019958
003			OCoLC
005			20160610094317.0
008			160219s2014 miua 000 0deng d
020			_a9781499101089 _q(pbk.)
035			_a(OCoLC)940019958
040			_aWIVLS _beng _erda _cWIVLS _dOCLCQ
245	0	0	_aExtraordinary gifts, unique challenges : _bWilliams Syndrome / _cedited by Michelle Self, Ph. D., Vanessa Coggshall, and Tess Roach.
264		1	_aTroy, MI : _bWilliams Syndrome Association, _c2014
300			_avi, 185 pages : _billustrations ; _c23 cm
336			_atext _btxt _2rdacontent
337			_aunmediated _bn _2rdamedia
338			_avolume _bnc _2rdacarrier
505			_aPART I: THE BEGINNING. - 1. The diagnosis. - 2. Surgeries, medical issues and early intervention. - PART II: LIFE GOES ON - BEAUTIFULLY. - 3. Sports. - 4. Joys and victories. - 5. Gifts. - 6. Young adults. - 7. International perspectives. - PART III: REFLECTIONS FROM ADULTS WITH WILLLIAMS SYNDROME.
520			_aA collection of essays written by parents, family, and friends of children with Williams syndrome, telling in their own words of their challenges and triumphs, their heartaches and moments of bliss. In addition, nine adults with Williams syndrome give advice to younger people with the diagnosis, while reflecting on what their own parents did that helped them the most. Williams syndrome is a genetic condition affecting 1 in 10,000 people worldwide. It is caused by a spontaneous deletion of one pair of a few dozen genes on chromosome 7. Individuals with Williams syndrome often have severe cardiovascular issues, developmental delays, and difficulties living independently, but also, in general, have outgoing personalities, enormous empathy, and a strong affinity for music.
650		0	_aWILLIAMS SYNDROME _92782
650		0	_aPERSONAL NARRATIVES _91844
700	1		_aSelf, Michelle A., _d1963- _eeditor.
700	1		_aCoggshall, Vanessa, _eeditor.
700	1		_aRoach, Tess, _d1974- _eeditor.
901			_aSYNDROMES
942			_2ddc _cB
948			_hHELD BY NWIHC - 2 OTHER HOLDINGS
999			_c21892 _d21892