Down syndrome- general. March 2019 CM

This list contains 19 titles

Can I tell you about Down syndrome? : a guide for friends, family and professionals / Elizabeth Elliott ; illustrated by Manjit Thapp. Series: Can I Tell You About ...? | Can I tell you about-- ? series
Description:
  • 1 online resource (40 pages) : illustrations.
Publisher:
  • London, England ; Philadelphia, Pennsylvania : Jessica Kingsley Publishers, 2016.
  • 2016
Not available: IHC Library: Ebook Read Online
Don't let it get you Down syndrome
Description:
  • 1 volume : illustratins ; 21 cm
  • "Jamie has Down’s syndrome, autistic spectrum disorder and attention deficit hyperactivity disorder. He is a beautiful, charming and lovable little boy, but he is also - how can we put this? - an exceptionally “challenging” child. In this hilarious, heart-warming and unforgettable memoir, Jamie's long-suffering dad shares a selection of side-splitting and occasionally poignant stories from Jamie’s chaotic childhood. Find out why he can never go back to his local library, and why the staff at his local swimming pool flinch whenever he arrives. ​The author also offers his own witty take on all sorts of topics connected to the subject of disability, and parenthood in general. This book will be adored by anyone who has ever known someone with special needs, or has ever been a parent, or indeed, anyone who enjoys reading well-written and interesting comic memoirs." - BOOK JACKET
Publisher:
  • [UK] S. K. Dinning, 2014
B 820 DIN
Downs : the history of a disability / David Wright.
Description:
  • xiii, 239 pages : illustrations, portraits ; 21 cm
  • For 150 years, Down's Syndrome has constituted the archetypal mental disability, easily recognizable by distinct facial anomalies and physical stigmata. This book looks at the care and treatment of Down's sufferers from Medieval Europe to the present day. In a narrow medical sense, Down's syndrome is a common disorder caused by the presence of all or part of an extra 21st chromosome. It is named after John Langdon-Down, the British asylum medical superintendent who described the syndrome as Mongolism in a series of lectures in 1866. In 1959, the disorder was identified as a chromosome 21 trisomy by the French pediatrician and geneticist Jerome Lejeune and has since been known as Down's Syndrome (in the English-speaking world) or Trisomy 21 (in many European countries). But children and adults born with this chromosomal abnormality have an important collective history beyond their evident importance to the history of medical science. Here the author looks at the care and treatment of Down's sufferer, described for much of history as 'idiots', from Medieval Europe to the present day. The discovery of the genetic basis of the condition and the profound changes in attitudes, care, and early identification of Down's in the genetic era, reflects the fascinating medical and social history of the disorder.
Publisher:
  • Oxford : Oxford University Press, 2011
B 730 WRI
Gifts : mothers reflect on how children with Down syndrome enrich their lives / edited by Kathryn Lynard.
Edition: 10th Anniversary edition.
Description:
  • 350 pages : illustrations ; 23 cm.
  • "This commemorative 10th anniversary edition of Gifts includes 10 new personal stories, along with "where are they now" updates on many of the children and families featured in the first edition. Gifts is the much-loved collection of over sixty essays written by mothers who share their truths about raising children with Down syndrome. Powerful then and powerful now, it affirms over and over that a life with an extra chromosome is one worth living." - PUBLISHER'S WEBSITE
Publisher:
  • Bethesda, MD : Woodbine House, 2016
B 730 LYN10
Hi, my name is Max! : Living it up with Down syndrome / Mary Elliott
Description:
  • 1 volume, unpaged : colour photographs : 21 cm
  • "Max Elliott was born with Down Syndrome. His mother, Mary Elliott, is on a loving crusade to help children and adults realize that Max is really just like them. They don't need to be afraid of Max because he looks and acts differently. He is smart, kind, funny and gentle. He loves sports and spending time with other children. "Hi, My Name is Max" is a delightful teaching and learning book for people of all ages." - BOOK JACKET
Publisher:
  • Milwaukee, WI Radiant Heart Press, 2017
B 900.73 ELL
I love you Natty : a sibling's introduction to Down's syndrome / Mia Goleniowska, Hayley Goleniowska.
Description:
  • 32 pages : illustrations, photograph, fully illustrated ; 22 x 22 cm
  • "If you are looking for a book that will get down and dirty about the challenges that families or siblings might face when welcoming a child with special needs into their family, then this is not the book for you. This book is innocence personified as it is written (primarily) by the older sister of a little girl who was born with Down's Syndrome. What you have as a result is all the adult pretensions stripped away, and just an open, personal and honest view from a loving sibling who sees her little sister for what she is... a funny (occasionally annoying) little sister." - Amazon.com
Publisher:
  • [Great Britain] : Downs Side Up, 2014
B 900.73 GOL
Life as Jamie knows it : an exceptional child grows up / Michael Berube.
Description:
  • 224 pages ; 24 cm
  • "The story of Jamie Berube's journey to adulthood and a meditation on disability in American life Published in 1996, Life as We Know It introduced Jamie Berube to the world as a sweet, bright, gregarious little boy who loves the Beatles, pizza, and making lists. At four, he is like many young people his age, but his Down syndrome leads most people to see him only in terms of his disability. Twenty years later, Jamie is no longer little, though he still loves the Beatles, pizza, and making lists. In Life as Jamie Knows It, Michael Berube chronicles his son's growth and his growing love of the world, writing as both a disability studies scholar and as a father. He follows Jamie through the transitions within his family and home life, through his school years, through the complicated process of entering the workforce with a disability. In a book that joins stirring memoir and sharp philosophical inquiry, Berube guides us through the labyrinth of ethical issues surrounding how we approach disability and uses Jamie's story to argue for a deeper understanding of disability that challenges us to move toward a more just, more inclusive society"--
Publisher:
  • Boston : Beacon Press, 2016
B 810 BER
Neuropsychological assessments of dementia in down syndrome and intellectual disabilities / Vee P. Prasher Editor
Edition: Second Edition
Description:
  • xvii, 311 pages : 24 cm ; illustrations
  • "This fully updated and expanded second edition of a successful book reviews the most important neuropsychological measures currently used in the assessment of dementia by the principal clinicians and researchers associated with the tests. Several clinicians and research workers, who have been at the forefront in developing the tests in question, provide clear practical guidance on the scope of each test, use in research, as well as an analysis of their accuracy and limitations. The international contributors have brought together a concise and practical guide on the role of neuropsychological testing to support the dementia assessment. Neuropsychological Assessments of Dementia in Down Syndrome and Intellectual Disabilities, Second Edition is an essential reference for all those working in the field of dementia and intellectual disabilities." - PUBLISHER'S WEBSITE
Publisher:
  • Springer : 2018 Cham,
B 780.1 PRA
Not Always Happy : An Unusual Parenting Journey.
Description:
  • 1 online resource (281 pages)
  • A humorous and poignant chronicle about adopting and raising a son with Down syndrome that celebrates the quirkiness of life.
Publisher:
  • Las Vegas : Central Recovery Press, LLC, 2017.
  • 2017.
Not available: IHC Library: Ebook Read Online
Not always happy : an unusual parenting journey / Kari Wagner-Peck.
Description:
  • xiv, 262 pages : illustrations ; 23 cm
  • "While most people meet their child for the first time in a delivery room, some parents have to meet their child in the reception area of an administrative building. Not Always Happy is a humorous and sharp chronicle about adopting and raising a son with Down syndrome from the Maine foster care system. The author quickly learns that life is best lived by expecting the unplanned when she makes the decision to become a parent in her late forties. As her unconventional family moves along in this life, she and her husband are less aware they are raising an atypical child or an adopted child. They are raising their child, and their family struggles with the same universal themes that any family goes through. Parents who have children with Down syndrome and other disabilities represent fifteen percent of all children between the ages of three to seventeen. Wagner-Peck provides an access point to start the debate about adopting a child with special needs along with her decision to homeschool. One of only a few books in the marketplace specifically addressing adopting from the foster care system. Kari Wagner-Peck, MSW, is a writer, blogger, and a freelance development consultant while she homeschools her son. She also has experience in arts management including development, event planning, and public speaking. Her writing has been featured in the Huffington Post, the New York Times' "Motherlode" blog, the Sydney Morning Herald, Yahoo Parenting, Parents Magazine's, and Empowering Parents. Kari Wagner-Peck currently resides in Portland, Maine"--
  • "A moving memoir about finding and adopting a son from the foster care system with Down syndrome and realizing that life is best lived by expecting the unplanned. As time passes, the author and her husband become less aware they are raising an atypical or adopted child. They are raising their child, no different than any other family"--
Publisher:
  • Las Vegas : CRP Central Recovery Press, 2017
B 810 WAG
Off to a good start : a behaviorally based model for teaching children with Down syndrome / Emily A. Jones, Kathleen M. Feeley.
Description:
  • 185 pages : illustrations ; 28 cm
  • "The authors [of this book] share the compelling research about the benefits of using ABA methods with children with Down syndrome, describe ABA principles and procedures, and provide the ABA-based curriculum they’ve used for nearly 20 years to successfully teach infants through kindergarteners with Down syndrome. With these books, readers will learn ABA practices for teaching children the all-important foundational skills in motor, social-communication, cognitive, and self-care development." - PUBLISHER'S WEBSITE
Publisher:
  • Bethesda, MD : Woodbine House, 2019
  • 2019
B 730 JON
Reasons to smile : celebrating people living with down syndrome
Description:
  • 124 pages : photographs, some coloured : 19 cm x 19 cm
  • "This compilation of 56 encouraging and eye-opening short writings by a variety of authors across the globe celebrates the lives of people living with Down syndrome. Together with 56 inspiring "slice of life" photos, these candid true stories, including the renowned "Welcome to Holland", provide inspiration and connection. Parents and families of children living with Down syndrome will discover a wealth of positivity and valuable guidance... And anyone who is looking to learn more about Down syndrome will discover a world full of possibilities they never knew existed." - JACKET COVER
Publisher:
  • Atglen, PA : Schiffer Pub., Ltd., 2016
B 730 KNA
Supporting people with learning disabilities and dementia : a training pack for support staff (based on the Supporting Derek film and guide) / Karen Watchman, Heather Wilkinson and Philly Hare
Description:
  • 84 pages : illustrations, some colour ; 30 cm
  • "Previously the 'Supporting Derek' resource provided introductory information and suggested activties to help staff support people with learning disabilities and dementia. In this revised and updated edition, the authors have developed a structured training programme that will enhance the learning of the whole staff team, with a self-study guide included to benefit staff or volunteers who may find it difficult to attend formal training. The training will be valuable to all health and social care pratitioners who support people who have a learning disability and dementia, or who are at risk of developing one and people who have a learning disability who live or work alongside people who have dementia." - BOOK JACKET
Publisher:
  • Hove : Pavilion Publishing and Media Ltd, 2018
Not available: IHC Library: Checked out
Supporting positive behavior in children and teens with down syndrome : the respond but don't react method / David S. Stein.
Edition: First edition.
Description:
  • xii, 138 pages : illustrations ; 23 cm
  • This book examines how the brain of a person with Down syndrome works, how those differences impact behavior, and why bad behavior should not be viewed as a willful act. Governed by this new awareness, parents are in a better position to change and manage their child’s behavior using these guiding principles: Be proactive, not reactive Be consistent Use visual schedules & Social Stories to direct behavior Develop a token reward chart Keep gut reactions in check Teach siblings to ignore bad behavior Learn effective disciplinary techniques Know when professional help is needed Some of these parenting concepts are intuitive, others are not, but when they are followed consistently, children and teens with Down syndrome do their best behaviorally and the parent-child relationship remains as positive and loving as it should be." - PUBLISHER'S WEBSITE
Publisher:
  • Bethesda, MD : Woodbine House, 2016
  • 2016
Other title:
  • Respond but don't react method
Not available: IHC Library: Checked out
Teaching math to people with Down syndrome, and other hands-on learners : strategies and materials / DeAnna Horstmeier
Edition: Second edition.
Description:
  • 371 pages : illustrations ; 28 cm
  • Children and adults with Down syndrome need math for the real world—counting with meaning, adding the scores in a game, and tracking time in order to keep to a schedule. Written in a straightforward and user-friendly style, the new second edition of Teaching Math to People with Down Syndrome provides strategies and activities that are relevant to daily living, are concrete and practical, offer hands-on practice, and provide opportunity for successful completion. The included appendices, available to photocopy, are chockfull of over 150 activities—worksheets, games, and teaching aids—to practice math skills. Parents and teachers can use the comprehensive coverage of math concepts to tailor lessons to students’ needs at home and in the community, incorporate goals into IEPs, and help students access the general education curriculum. - PUBLISHER'S WEBSITE
Publisher:
  • Bethesda, MD : Woodbine House, 2016
B 730 HOR
The many faces of Down syndrome : Stories of inspiration, hope and laughter / compiled by Ann Aubitz
Edition: Second edition
Description:
  • 141 pages illustrations 23 cm
  • [This book] is a collection of stories from families caring for people with Down Syndrome... Whether you have a person with Down syndrome in your life or not, this book will enhance your understanding and deepen your empathy for families who are blessed to have someone with Down syndrome in their midst." - BOOK JACKET
Publisher:
  • Burnsville, MN Special Stars Publishing : 2018
B 730 AUB
The parent's guide to Down syndrome : advice, information, inspiration, and support for raising your child from diagnosis through adulthood
Description:
  • 255 pages ; 23 cm.
  • "As a parent of a child diagnosed with Down syndrome, you may be feeling unsure of what to do next or where your child's journey will take you. In this book, authors Jen Jacob and Mardra Sikora share their experiences and guide you through life with Ds with expert advice from diagnosis to adulthood. Each page teaches you ways to support your child through major milestones; nurture development and ensure behavioral, social and cognitive success." - BOOK JACKET
Publisher:
  • Avon, MS : Adams Media, 2016
B 730 JAC
Trisomy 21 what we can learn from people with Down syndrome ; 2,000 people and their neuropsychological findings / Andre Frank Zimpel ; with contributions from: Kim Lena Hurtig-Bohn, Angela Kalmutzke, Torben Rieckmann, Alfred Christoph Rohm
Description:
  • 212 pages : illustrations ; 24 cm.
  • For a long time, it was assumed that a genetic disposition such as trisomy 21 enables predictions to be made about overall personality development. But who could have ever imagines that people with trisomy 21 (Down syndrome) would also be capable of earning a university degree? We have examined 1.294 people with trisomy 21. The results showed that people with trisomy 21 benefit more from abstract learning than their neurotypical counterparts and two-year-olds with the syndrome learn first to read and only then to speak - and they understand algebra better than arithmetic. Ignorance of neurodiversity inevitably leads to learning difficulties when learning at the same pace as others. This applies to autism and trisomy 21 to the same extent. That's why this book advocates the recognition of trisomy 21 as a variant in the spectrum of human neurodiversity.
Publisher:
  • Gottingen ; Bristol, CT : Vandenhoeck & Ruprecht, 2016
B 730 ZIM
Trisomy 21 : what we can learn from people with down syndrom : 2,000 people and their neuropsychological findings / Andre Frank Zimpel ; with contributions from, Kim Lena Hurtig-Bohn [and three others].
Description:
  • 1 online resource (213 pages) : illustrations, tables
Publisher:
  • Gottingen, [Germany] : Vandenhoeck & Ruprecht, 2016.
  • 2016
Other title:
  • Trisomy twenty one
Not available: IHC Library: Ebook Read Online

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