What does it mean to listen to people with dementia

By: Reid, D.
Contributor(s): Ryan, T | Enderby, P.
Series: Disability & Society 16 (3) 2001: 377-392.Publisher: 2001Content type: text Media type: unmediated Carrier type: volume Subject(s): DEMENTIA | SERVICE DELIVERY | SERVICE PROVISION | SERVICES | RESPITE CARE | SOCIAL SCIENCE RESEARCH | INFORMED CONSENTSummary: A total of 19 people with dementia were interviewed as part of a study into unmet respite care need amongst caregivers and day-care attenders. Some important contextual debates associated with conducting social research with people with dementia are considered. These include informed consent, competency, and how the interests of caregivers and people with dementia are bound together. The findings and the associated methodological insights suggest day-care attenders have important things to say as service-users if appropriate strategies for listening are employed. [AJ].
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A total of 19 people with dementia were interviewed as part of a study into unmet respite care need amongst caregivers and day-care attenders. Some important contextual debates associated with conducting social research with people with dementia are considered. These include informed consent, competency, and how the interests of caregivers and people with dementia are bound together. The findings and the associated methodological insights suggest day-care attenders have important things to say as service-users if appropriate strategies for listening are employed. [AJ].

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