Consensus statement of the International Summit on Intellectual Disability and Dementia related to end-of-life care in advanced dementia

By: McCallion, Philip.
Contributor(s): Hogan, Mary | Santos, Flavia H | McCarron, Mary | Service, Kathryn | Stemp, Sandy | Keller, Seth | Fortea, Juan | Bishop, Kathleen | Watchman, Karen | Janicki, Matthew P.
Series: Journal of Applied Research in Intellectual Disabilities - Special Issue: End of Life and People with Intellectual Disability 30 (6) November 2017: 1160-1164. 2017Disc region: text file PDF rda.Content type: text Media type: computer Carrier type: online resource Subject(s): Working Group of the International Summit on Intellectual Disability and Dementia | INTELLECTUAL DISABILITY | ADULTS | DEMENTIA | END OF LIFE CAREOnline resources: Read this Article Summary: The International Summit on Intellectual Disability and Dementia produced a report on End of life care in advanced dementia that provides a synthesis statement which encompasses defining the state of advanced dementia, proposes use of palliative care services (including hospice) and recommends special efforts for enabling advanced directives and advance care planning prior to the extensive progression of dementia. The Summit further recommended that when aiding adults with advanced dementia, the following be undertaken: integrative efforts between intellectual disability and palliative care providers, specialized training for carers on end of life care and supports, and involvement of adults with intellectual disability early on in their advance care planning.
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The International Summit on Intellectual Disability and Dementia produced a report on End of life care in advanced dementia that provides a synthesis statement which encompasses defining the state of advanced dementia, proposes use of palliative care services (including hospice) and recommends special efforts for enabling advanced directives and advance care planning prior to the extensive progression of dementia. The Summit further recommended that when aiding adults with advanced dementia, the following be undertaken: integrative efforts between intellectual disability and palliative care providers, specialized training for carers on end of life care and supports, and involvement of adults with intellectual disability early on in their advance care planning.

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