"We didn't tell everybody because everybody didn't need to know": an examination of parental disability-disclosure of Spina Bifida
By: Copeland, Kristopher.
Contributor(s): Lasater, BreeAnna L.
Series: Disability & Society 33 (9) Octoberr 2018: 1482-1502. 2018Disc region: text file PDF rda.Content type: text Media type: computer Carrier type: online resource Subject(s): SPINA BIFIDA | INFANTS | PARENTS | DISCLOSURE | COMMUNICATION | PRIVACY | STIGMA | QUALITATIVE RESEARCHOnline resources: Read this Article Summary: This qualitative study sheds light on the process that parents go through as they learn of a spina bifida diagnosis and the communication strategies that are used to discuss an expected disability diagnosis with others. Interviews with 30 participants discovered that there were immediate disclosures made with family and close friends. Additionally, circumstantial disclosures took place when returning to routine behaviors. Participants described five distinctive criteria that developed a privacy boundary: self-blame, grief, helping others cope, maintaining privacy of child, and stigma. Implications for parents, medical professionals and communication scholars are discussed.Item type | Current library | Call number | Status | Date due | Barcode | Item holds | |
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Article Research | IHC Library | Article (Browse shelf(Opens below)) | Available (Article available on request) | W0012112 |
This qualitative study sheds light on the process that parents go through as they learn of a spina bifida diagnosis and the communication strategies that are used to discuss an expected disability diagnosis with others. Interviews with 30 participants discovered that there were immediate disclosures made with family and close friends. Additionally, circumstantial disclosures took place when returning to routine behaviors. Participants described five distinctive criteria that developed a privacy boundary: self-blame, grief, helping others cope, maintaining privacy of child, and stigma. Implications for parents, medical professionals and communication scholars are discussed.
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