Understanding profound intellectual and multiple disabilities in adults
Lyle, Dreenagh
creator
text
bibliography
enk
2019
2019
monographic
eng
xv, 184 pages : 24 cm
This book explores what happens to people with profound intellectual and multiple disabilities (PIMD) when they reach adulthood. It provides an examination of various terms and definitions in use and a critical exploration of current UK policies. The author brings a wealth of many years' experience as a family carer, independent consultant and trainer to demonstrate the significant changes that a person-centred, specialised therapeutic and incremental approach can make to an individual's life. Advances in medical science mean more than ever, people with (PIMD) are growing into adulthood. What is this experience like for an adult who needs support in all aspects of their life? How do we include them in planning support when their intellectual disability means they cannot tell us first hand, what they want or need? Too often this group are overlooked or considered as an afterthought in policy and planning. Notions of independence, employment and mainstream inclusion are all problematic policy ideas for this group of people. Within one-size-fits-all service planning this focus means there is less capacity to meet their life-long specialist, complex and individualised needs.
1. The 'ignored minority'. - 2. Policy frameworks. - 3. Disrupting the illusion. - 4. All in the same direction or 'it's about you' - 5. Raising out sights. - 6. Raising the bar: beyond the 'burden of non-productiveness'. - Index.
Dreenagh Lyle.
Includes bibliographical references and index.
PROFOUND INTELLECTUAL AND MULTIPLE DISABILITIES (PIMD)
ADULTS
DEFINITION
PREVALENCE
COMPLEX NEEDS
COMMUNICATION
SUPPORT SERVICES
NORMALISATION
SUPPORT SERVICES
STAFF TRAINING
POLICY
FAMILY CAREGIVERS
INCLUSION
PERSONALISED SUPPORT
BEHAVIOUR SUPPORT
CASE STUDIES
UNITED KINGDOM
VALUING PEOPLE
RAISING OUR SIGHTS
DEATH BY INDIFFERENCE
9780367029623
DLC
190307
20230318061817.0
on1089007127
eng