TY - SER AU - de Geus-Neelen, Karin C. J. M. AU - van Oorsouw, Wietske M. W. J. AU - Hendriks, Lex A. H. C. AU - Embregts, Petri J. C. M. TI - Perceptions of staff and family of the quality of life of people with severe to profound intellectual disability T2 - Journal of Intellectual & Developmental Disability PY - 2019/// KW - PROFOUND INTELLECTUAL AND MULTIPLE DISABILITIES (PIMD) KW - QUALITY OF LIFE KW - FAMILIES KW - SUPPORT STAFF KW - PROXY REPORT KW - THE NETHERLANDS KW - SUBJECTIVE EXPERIENCES N2 - People with severe to profound intellectual disability are not able to report their quality of life well. Results of a questionnaire indicate that the people making proxy judgements about their QOL are not in good agreement on some of the most critical subjective indicators. Suggests that careful information exchange about these indicators is important for improving the QOL of people with ID UR - https://ihc.idm.oclc.org/login?url=https://www.tandfonline.com/doi/full/10.3109/13668250.2017.1310813 ER -