TY  - BOOK
AU  - Busby, Mary Beth
AU  - Massey, Megan
TI  - Dear Megan : : letters on life, love and fragile X
SN  - 978193310223
PY  - 2006///
CY  - Sterling, VA
PB  - Capital Books
KW  - FRAGILE X SYNDROME
KW  - FAMILY EXPERIENCES
KW  - FAMILY INTERACTION
KW  - CORRESPONDENCE
N1  - Chapter 1 Welcome to FRAXA
Chapter 2 What the Blind Palm Reader Saw
Chapter 3 Dropping Bread Crumbs
Chapter 4 Diagnosis and Dealing
Chapter 5 FRAXA's Founding
Chapter 6 Lobbying
Chapter 7 How Sweet It Is
Chapter 8 To the White House
Chapter 9 Washington Life
Chapter 10 Robert's Birthday: Trauma Time
Chapter 11 All that Autizzing
Chapter 12 Guilt Trips and Valentines
Chapter 13 Family History
Chapter 14 So, What Is "Least Restrictive" Really?
Chapter 15 Let's Party!
Chapter 16 Your Tax Dollars at Work
Chapter 17 Guardian Angels and Messenger Angels
Chapter 18 Necessarily Delayed Gratification
Chapter 19 Mother's Day
Chapter 20 What I Woulda, Coulda, Shoulda Said
Chapter 21 Residential Placement: The World's Most Agonizing Decision
Chapter 22 Right and Wrong Behavior
Chapter 23 What's in a Name
Chapter 24 Kelly's Good News
Chapter 25 Riveting Research
Chapter 26 Cooking as Therapy
Chapter 27 Jack Massey's Transition to Boarding School
Chapter 28 Mary Beth's Excellent Adventure Dream
Chapter 29 Marriage and Divorce
Chapter 30 January Blahs and Blues
N2  - "An important and highly original book on fragile X. Written as letters between two mothers [of children with fragile X this] is highly readable, informative, ground-breaking and unforgettable." - BOOK JACKET
ER  -