A revised stress and coping framework for staff and carers of persons with intellectual disabilities and dementia

By: McCarron, Mary.
Contributor(s): McCallon, Philip.
Series: Journal of Policy and Practice in Intellectual Disabilities 2 (2) 2005: 139-148.Publisher: 2005Content type: text Media type: unmediated Carrier type: volume Subject(s): DEMENTIA | STRESS | STRESS MANAGEMENT | CARE GIVING | PARENTS | STAFF STRESSSummary: Sought to modify and apply Pearlin et al.'s "Stress and Coping Framework" model (which was designed to guide research on family caregiving) to research that could help understand the experiences of staff carers of persons with intellectual disabilities affected by dementia. Reviewed the existing literature on the "Stress and Coping Framework" model, as well as additional literature on family and staff caregiving for persons with dementia and intellectual disabilities, in an attempt to identify the model's key variables and to determine whether these variables could be applied to research with staff. Determined that the domains of the "Stress and Coping Framework" model appeared relevant for staff carer research; but proposed changes in some of the variables defining those domains (e.g., some of the original demographic variables were dropped as less important for staff carers and some organizational variables are added). Concluded that, with modification, Pearlin et al.'s model of stress and coping is a useful guide to support research on the experiences of staff carers of persons with intellectual disabilities affected by dementia. Proposed a modified "Stress and Coping Framework" structure that can be applied to research in the area of staff burden.
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Sought to modify and apply Pearlin et al.'s "Stress and Coping Framework" model (which was designed to guide research on family caregiving) to research that could help understand the experiences of staff carers of persons with intellectual disabilities affected by dementia. Reviewed the existing literature on the "Stress and Coping Framework" model, as well as additional literature on family and staff caregiving for persons with dementia and intellectual disabilities, in an attempt to identify the model's key variables and to determine whether these variables could be applied to research with staff. Determined that the domains of the "Stress and Coping Framework" model appeared relevant for staff carer research; but proposed changes in some of the variables defining those domains (e.g., some of the original demographic variables were dropped as less important for staff carers and some organizational variables are added). Concluded that, with modification, Pearlin et al.'s model of stress and coping is a useful guide to support research on the experiences of staff carers of persons with intellectual disabilities affected by dementia. Proposed a modified "Stress and Coping Framework" structure that can be applied to research in the area of staff burden.

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