Understanding Rett syndrome : a practical guide for parents, teachers and therapists

By: Lindberg, Barbro.
Publisher: Toronto Hogrefe and Huber 1991Description: 171 p. : ill.ISBN: 88937; 033; 8.Subject(s): MANAGEMENT | RETT SYNDROME | CARE GIVINGSummary: Barbro Lindberg presents the clinical picture and treatment modalities of Rett Syndrome. Those disorder was described more than 30 years ago. However, only through the incredible activities undertaken by Kathy Hunter in the United States has it received such unusally widespread international attention. Described here is a clinical syndrome that has now been diagnosed in more than 13 countries, and the extent to which the picture is everywhere consistent, is nothing less than remarkable. This is a disorder found exclusively in girls, presenting a particular characterisation of neurological symptoms. Today research is being conducted worldwide in search of its cause. Barbo Lindberg's special involvement has been in the day-to-day life of these girls and women. Having studied roles of their parents and guardians, she presents her data and discussion with painstaking exactness and detail. This monograph affords a very empathetic view of the situation these parents are in and will certainly be a help in enabling coping with such a difficult chronic situation that concerns not just the mother, but the entire family. [AJ].
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Book IHC Library 770 LIN (Browse shelf(Opens below)) Available W002498
Book IHC Library 770 LIN (Browse shelf(Opens below)) Available 5307B
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Barbro Lindberg presents the clinical picture and treatment modalities of Rett Syndrome. Those disorder was described more than 30 years ago. However, only through the incredible activities undertaken by Kathy Hunter in the United States has it received such unusally widespread international attention. Described here is a clinical syndrome that has now been diagnosed in more than 13 countries, and the extent to which the picture is everywhere consistent, is nothing less than remarkable. This is a disorder found exclusively in girls, presenting a particular characterisation of neurological symptoms. Today research is being conducted worldwide in search of its cause. Barbo Lindberg's special involvement has been in the day-to-day life of these girls and women. Having studied roles of their parents and guardians, she presents her data and discussion with painstaking exactness and detail. This monograph affords a very empathetic view of the situation these parents are in and will certainly be a help in enabling coping with such a difficult chronic situation that concerns not just the mother, but the entire family. [AJ].

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