Cerebral palsy : a complete guide for caregiving / Freeman Miller, Steven J. Bachrach and the Cerebral Palsy Center at Nemours/Alfred I. duPont Hospital for Children.

By: Miller, Freeman.
Contributor(s): Bachrach, Steven J.
Series: A Johns Hopkins Press health book.Copyright date: 2017Publisher: Baltimore, MD : Johns Hopkins University Press, 2017Edition: Third edition.Description: xii, 479 pages : illustrations ; 26 cm.Content type: text | still image Media type: unmediated Carrier type: volumeISBN: 9781421422169.Subject(s): CEREBRAL PALSY | CARE | CAREGIVERS | TREATMENT
Contents:
PART ONE: CEREBRAL PALSY HANDBOOK. - 1. What is cerebral palsy? - 2. An overview of early child development. - 3. Medical problems associated with cerebral palsy. - 4. Intellectual, psychological and social development. -5 Hemiplegia. - 6. Diplegia. - 7. Quadriplegia. - 8. The adult with cerebral palsy. - 9. How the health care system works. - 10. Financing care for the child with cerebral palsy. - 11. Navigating the educational system. - 12. Being an advocate for your child: using the legal system. - PART TWO: CAREGIVING TECHNIQUES. - Taking care of yourself when you care for others. - Protecting the caregiver's back: basic body mechanics. - Making things easier for you and your child: home modifications. - Choosing appropriate seating. - Choosing and using care seats. - About wheelchair maintenance. - Pressure management awareness. - Choosing a stander. - About walkers and gait trainers. - About braces. - Choosing the correct shoes. - Increasing independence with service dogs. - Managing the system. - Working with a case manager. - Letters of medical necessity. - Occupations for adults with cerebral palsy. - About hospitalization. - Keeping medical history records. - Life planning process. - About casts. - Using nutritional boosters. - Managing tube feedings. - Providing oral care. - Toilet training your child. - Giving an enema. - Giving rectal medications or suppositories. - Suctioning techniques. - PART THREE: CEREBRAL PALSY ENCYCLOPEDIA: From Achilles Tendon Lengthening to Vocational Rehabilitation.
Summary: "When their child has cerebral palsy, parents need answers. They seek up-to-date advice they can count on to make sure their child has the best possible health and well-being ... [This] new edition is thoroughly revised to incorporate the latest medical thinking, including advances in diagnosis, treatment, and terminology. Every chapter includes new content on topics ranging from genetics to pain, temperature control, palliative care, why growth suppression is sometimes recommended, the Affordable Care Act, and how to make it easier for siblings to cope. Chapter 8 has been entirely rewritten to better help adolescents prepare for the transition to adulthood. New classification systems, such as the gross motor function classification system and the Functional Mobility System, are described and explained. And a number of emerging therapies -- including marijuana oil, cord blood transfusion, deep brain stimulation, epilepsy surgery, and growing spinal rods -- are explored. Intended for parents, grandparents, teachers, therapists, and others who care for and about people with cerebral palsy and cerebral palsy-like conditions, this is an essential and compassionate guide."--Amazon.com.
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Includes bibliographical references (pages 459-460) and index.

PART ONE: CEREBRAL PALSY HANDBOOK. - 1. What is cerebral palsy? - 2. An overview of early child development. - 3. Medical problems associated with cerebral palsy. - 4. Intellectual, psychological and social development. -5 Hemiplegia. - 6. Diplegia. - 7. Quadriplegia. - 8. The adult with cerebral palsy. - 9. How the health care system works. - 10. Financing care for the child with cerebral palsy. - 11. Navigating the educational system. - 12. Being an advocate for your child: using the legal system. - PART TWO: CAREGIVING TECHNIQUES. - Taking care of yourself when you care for others. - Protecting the caregiver's back: basic body mechanics. - Making things easier for you and your child: home modifications. - Choosing appropriate seating. - Choosing and using care seats. - About wheelchair maintenance. - Pressure management awareness. - Choosing a stander. - About walkers and gait trainers. - About braces. - Choosing the correct shoes. - Increasing independence with service dogs. - Managing the system. - Working with a case manager. - Letters of medical necessity. - Occupations for adults with cerebral palsy. - About hospitalization. - Keeping medical history records. - Life planning process. - About casts. - Using nutritional boosters. - Managing tube feedings. - Providing oral care. - Toilet training your child. - Giving an enema. - Giving rectal medications or suppositories. - Suctioning techniques. - PART THREE: CEREBRAL PALSY ENCYCLOPEDIA: From Achilles Tendon Lengthening to Vocational Rehabilitation.

"When their child has cerebral palsy, parents need answers. They seek up-to-date advice they can count on to make sure their child has the best possible health and well-being ... [This] new edition is thoroughly revised to incorporate the latest medical thinking, including advances in diagnosis, treatment, and terminology. Every chapter includes new content on topics ranging from genetics to pain, temperature control, palliative care, why growth suppression is sometimes recommended, the Affordable Care Act, and how to make it easier for siblings to cope. Chapter 8 has been entirely rewritten to better help adolescents prepare for the transition to adulthood. New classification systems, such as the gross motor function classification system and the Functional Mobility System, are described and explained. And a number of emerging therapies -- including marijuana oil, cord blood transfusion, deep brain stimulation, epilepsy surgery, and growing spinal rods -- are explored. Intended for parents, grandparents, teachers, therapists, and others who care for and about people with cerebral palsy and cerebral palsy-like conditions, this is an essential and compassionate guide."--Amazon.com.

Patron comment on 11/09/2020

Thank you very much for this book. It has been a wonderful source of information.

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