Perceptions of staff and family of the quality of life of people with severe to profound intellectual disability

By: de Geus-Neelen, Karin C. J. M.
Contributor(s): van Oorsouw, Wietske M. W. J | Hendriks, Lex A. H. C | Embregts, Petri J. C. M.
Series: Journal of Intellectual & Developmental Disability 44 (1) March 2019: 42-50. 2019Disc region: text file PDF rda.Content type: text Media type: computer Carrier type: online resource Subject(s): PROFOUND INTELLECTUAL AND MULTIPLE DISABILITIES (PIMD) | QUALITY OF LIFE | FAMILIES | SUPPORT STAFF | PROXY REPORT | THE NETHERLANDS | SUBJECTIVE EXPERIENCESOnline resources: Read this Article Summary: People with severe to profound intellectual disability are not able to report their quality of life well. Results of a questionnaire indicate that the people making proxy judgements about their QOL are not in good agreement on some of the most critical subjective indicators. Suggests that careful information exchange about these indicators is important for improving the QOL of people with ID.
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Article Research IHC Library Article (Browse shelf(Opens below)) Available (Article available on request) W0010391
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People with severe to profound intellectual disability are not able to report their quality of life well. Results of a questionnaire indicate that the people making proxy judgements about their QOL are not in good agreement on some of the most critical subjective indicators. Suggests that careful information exchange about these indicators is important for improving the QOL of people with ID.

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