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Perceptions of staff and family of the quality of life of people with severe to profound intellectual disability

By: de Geus-Neelen, Karin C. J. M.
Contributor(s): van Oorsouw, Wietske M. W. J | Hendriks, Lex A. H. C | Embregts, Petri J. C. M.
Series: Journal of Intellectual & Developmental Disability 44 (1) March 2019: 42-50. 2019Subject(s): PROFOUND INTELLECTUAL AND MULTIPLE DISABILITIES | QUALITY OF LIFE | FAMILIES | SUPPORT STAFF | PROXY REPORT | THE NETHERLANDS | SUBJECTIVE EXPERIENCESOnline resources: Click to read article online IHC Library Members Summary: People with severe to profound intellectual disability are not able to report their quality of life well. Results of a questionnaire indicate that the people making proxy judgements about their QOL are not in good agreement on some of the most critical subjective indicators. Suggests that careful information exchange about these indicators is important for improving the QOL of people with ID.
List(s) this item appears in: Quality of life June 2019
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People with severe to profound intellectual disability are not able to report their quality of life well. Results of a questionnaire indicate that the people making proxy judgements about their QOL are not in good agreement on some of the most critical subjective indicators. Suggests that careful information exchange about these indicators is important for improving the QOL of people with ID.

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