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The roles of adult siblings in the lives of people with severe intellectual and developmental disabilities

By: Hall, Sarah A.
Contributor(s): Rossetti, Zach.
Series: Journal of Applied Research in Intellectual Disabilities 31 (3) May 2018: 423-434. 2018Subject(s): SEVERE PROFOUND AND MULTIPLE DISABILITIES | ADULT SIBLINGS | ROLESOnline resources: Click to read article online IHC Library Members Summary: Siblings of people with intellectual and developmental disabilities (IDD) often assume key roles to support their brothers and sisters. For people with more significant support needs, siblings may undertake additional roles and responsibilities throughout their lives. The purpose of the present study was to identify and describe the roles of adult siblings who have a brother or sister with severe IDD. Thematic analysis resulted in identification of several roles including caregiver, friend (social partner), advocate, legal representative, sibling (teacher/role model), leisure planner and informal service coordinator.
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Siblings of people with intellectual and developmental disabilities (IDD) often assume key roles to support their brothers and sisters. For people with more significant support needs, siblings may undertake additional roles and responsibilities throughout their lives. The purpose of the present study was to identify and describe the roles of adult siblings who have a brother or sister with severe IDD. Thematic analysis resulted in identification of several roles including caregiver, friend (social partner), advocate, legal representative, sibling (teacher/role model), leisure planner and informal service coordinator.

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