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Involvement of nurses in end‐of‐life discussions for severely disabled children

By: Zaal-Schuller, I. H.
Contributor(s): Willems, D. I | Ewals, F | van Goudoever, J. B | de Vos, M. A.
Series: Journal of Intellectual Disability Research 62 (4) April 2018: 330-338. 2018Subject(s): SEVERE PROFOUND AND MULTIPLE DISABILITIES | CHILDREN | END OF LIFE | DECISION MAKING | NURSES | THE NETHERLANDS | EoLDsOnline resources: Click to read article online IHC Library Members Summary: In children with profound intellectual and multiple disabilities (PIMD), discussions about end‐of‐life decisions (EoLDs) are comparatively common. Nurses play a crucial role in the care for these children, yet their involvement in EoLD discussions is largely unknown. The objective of this research was to investigate the involvement in the hospital of nurses in discussions with parents and physicians about EoLDs for children with PIMD.
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In children with profound intellectual and multiple disabilities (PIMD), discussions about end‐of‐life decisions (EoLDs) are comparatively common. Nurses play a crucial role in the care for these children, yet their involvement in EoLD discussions is largely unknown. The objective of this research was to investigate the involvement in the hospital of nurses in discussions with parents and physicians about EoLDs for children with PIMD.

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