Attendance at Fragile X Specialty Clinics : Facilitators and Barriers
By: Kidd, Sharon A.
Contributor(s): Raspa, Melissa | Clark, Renee | Usrey-Roos, Holly | Wheeler, Anne C | Liu, Jessica A | Wylie, Amanda | Sherman, Stephanie L.
Series: American Journal on Intellectual and Developmental Disabilities 122 (6) November 2017: 457-475. 2017Disc region: text file PDF rda.Content type: text Media type: computer Carrier type: online resource Subject(s): FRAGILE X SYNDROME
| CHILDREN | HEALTH SERVICES | UNITED STATES OF AMERICAOnline resources: Read this Article Summary: The goal of this article was to identify factors associated with attendance at FX Clinics in order to better understand the utilization of services among different subgroups of individuals and families. The purpose of the FX clinics is to provide best practice care in the evaluation and treatment of individuals with FXS and their families, including therapies, genetic counseling and referrals. This study is important, as it identifies populations that may be targeted to help broaden availability of these services, and identifies potential limitations of interpreting results from studies from different registries.
| Item type | Current library | Call number | Status | Date due | Barcode | Item holds | |
|---|---|---|---|---|---|---|---|
| Article Research | IHC Library | Article (Browse shelf(Opens below)) | Available (Article available on request) | W0010937 |
The goal of this article was to identify factors associated with attendance at FX Clinics in order to better understand the utilization of services among different subgroups of individuals and families. The purpose of the FX clinics is to provide best practice care in the evaluation and treatment of individuals with FXS and their families, including therapies, genetic counseling and referrals. This study is important, as it identifies populations that may be targeted to help broaden availability of these services, and identifies potential limitations of interpreting results from studies from different registries.
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