"I'm still here" : Exploring what matters to people with intellectual disability during advance care planning

By: McKenzie, Nicola.
Contributor(s): Mirfin-Veitch, Brigit | Conder, Jennifer | Brandford, Sharon.
Series: Journal of Applied Research in Intellectual Disabilities - Special Issue: End of Life and People with Intellectual Disability 30 (6) November 2017: 1089-1098. 2017Disc region: text file PDF rda.Content type: text Media type: computer Carrier type: online resource Subject(s): INTELLECTUAL DISABILITY | END OF LIFE | ADVANCE CARE PLANNINGOnline resources: Read this Article Summary: The process of planning and documenting one's own end-of-life preferences is referred to as advance care planning, and usually includes, but is not limited to, the following content: where I want to die; things I want to do before I die; how I want to be cared for; legal and financial matters; and what I want to happen after I die. This study sought to identify, from the perspective of people with intellectual disabilities and life limiting conditions, the factors that strengthened and inhibited their Advance Care Planning. Explores the experiences of four people with intellectual disability and life limiting conditions, through interviews and documentation reviews.
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The process of planning and documenting one's own end-of-life preferences is referred to as advance care planning, and usually includes, but is not limited to, the following content: where I want to die; things I want to do before I die; how I want to be cared for; legal and financial matters; and what I want to happen after I die. This study sought to identify, from the perspective of people with intellectual disabilities and life limiting conditions, the factors that strengthened and inhibited their Advance Care Planning. Explores the experiences of four people with intellectual disability and life limiting conditions, through interviews and documentation reviews.

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