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Making Sense of Bereavement in People with Profound Intellectual and Multiple Disabilities : Carer perspectives

By: Young, Hannah.
Contributor(s): Hogg, James | Garrard, Brenda.
Series: Journal of Applied Research in Intellectual Disabilities - Special Issue: End of Life and People with Intellectual Disability 30 (6) November 2017: 1035-1044. 2017Subject(s): SEVERE PROFOUND AND MULTIPLE DISABILITIES | END OF LIFE | DEATH | BEREAVEMENT | CAREGIVERS | PERSPECTIVESOnline resources: Click to read article online IHC Library Members Summary: People with intellectual disabilities are thought to have a reduced capacity for understanding death. Drawing on cognitive theory, researchers have suggested that those with profound intellectual and multiple disabilities mainly perceive loss as a mismatch between past and present experiences. However, very little research has considered how carers conceptualize bereavement in relation to this group. Interviews conducted with carers articulated two main themes: ‘difficulty articulating the experience of loss’ and ‘making sense of bereavement through familiar patterns’.
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People with intellectual disabilities are thought to have a reduced capacity for understanding death. Drawing on cognitive theory, researchers have suggested that those with profound intellectual and multiple disabilities mainly perceive loss as a mismatch between past and present experiences. However, very little research has considered how carers conceptualize bereavement in relation to this group. Interviews conducted with carers articulated two main themes: ‘difficulty articulating the experience of loss’ and ‘making sense of bereavement through familiar patterns’.

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