Supporting end of life decision making : Case studies of relational closeness in supported decision making for people with severe or profound intellectual disability
By: Watson, Joanne.
Contributor(s): Wilson, Erin | Gagiliassis, Nick.
Series: Journal of Applied Research in Intellectual Disabilities - Special Issue: End of Life and People with Intellectual Disability 30 (6) November 2017: 1022-1034. 2017Disc region: text file PDF rda.Content type: text Media type: computer Carrier type: online resource Subject(s): SEVERE PROFOUND AND MULTIPLE DISABILITIES | END OF LIFE | SUPPORTED DECISION MAKING | CASE STUDIESOnline resources: Read this Article Summary: The United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) promotes the use of supported decision making in lieu of substitute decision making. To date, there has been a lack of focus on supported decision making for people with severe or profound intellectual disability, including for end of life decisions. In this study five people with severe or profound intellectual disability's experiences of supported decision making were examined, particularly focusing on one participant's experiences at the end of his life.Item type | Current library | Call number | Status | Date due | Barcode | Item holds | |
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Article Research | IHC Library | Article (Browse shelf(Opens below)) | Available (Article available on request) | W0010834 |
The United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) promotes the use of supported decision making in lieu of substitute decision making. To date, there has been a lack of focus on supported decision making for people with severe or profound intellectual disability, including for end of life decisions. In this study five people with severe or profound intellectual disability's experiences of supported decision making were examined, particularly focusing on one participant's experiences at the end of his life.
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