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Supporting end of life decision making : Case studies of relational closeness in supported decision making for people with severe or profound intellectual disability

By: Watson, Joanne.
Contributor(s): Wilson, Erin | Gagiliassis, Nick.
Series: Journal of Applied Research in Intellectual Disabilities - Special Issue: End of Life and People with Intellectual Disability 30 (6) November 2017: 1022-1034. 2017Subject(s): SEVERE PROFOUND AND MULTIPLE DISABILITIES | END OF LIFE | SUPPORTED DECISION MAKING | CASE STUDIESOnline resources: Click to read article online IHC Library Members Summary: The United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) promotes the use of supported decision making in lieu of substitute decision making. To date, there has been a lack of focus on supported decision making for people with severe or profound intellectual disability, including for end of life decisions. In this study five people with severe or profound intellectual disability's experiences of supported decision making were examined, particularly focusing on one participant's experiences at the end of his life.
List(s) this item appears in: UNCRPD LW Dec17
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The United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) promotes the use of supported decision making in lieu of substitute decision making. To date, there has been a lack of focus on supported decision making for people with severe or profound intellectual disability, including for end of life decisions. In this study five people with severe or profound intellectual disability's experiences of supported decision making were examined, particularly focusing on one participant's experiences at the end of his life.

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