A community survey of children with severe intellectual disability and their families: psychological adjustment, carer distress and the effect of respite care,

By: Hoare, P (et al).
Series: Journal of Intellectual Disability Research 42 (3) 1998: 218-227.Publisher: 1998Content type: text Media type: unmediated Carrier type: volume Subject(s): ADJUSTMENT | CAREGIVERS | PROFOUND INTELLECTUAL AND MULTIPLE DISABILITIES (PIMD) | RESPITE CARESummary: The paper describes a cross-sectional study of the pyschological adjustment of 143 childrenn with severe disability and their families identified from a regional case register for children with special needs. Thirty eight per-cent of the children had significant psychiatric morbidity. By contrast, the overall level of distress in carers was that different from probable community prevalence figures. Nevertheless, distress among carers was consistently associated with increased disability in the child. Although respite care is a valuable resource for many carers, its use is indicative of underlying distress in the carer. [AJ].
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The paper describes a cross-sectional study of the pyschological adjustment of 143 childrenn with severe disability and their families identified from a regional case register for children with special needs. Thirty eight per-cent of the children had significant psychiatric morbidity. By contrast, the overall level of distress in carers was that different from probable community prevalence figures. Nevertheless, distress among carers was consistently associated with increased disability in the child. Although respite care is a valuable resource for many carers, its use is indicative of underlying distress in the carer. [AJ].

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