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Dreams die hard : family histories of adults with developmental disabilities as told by families... and caregivers. / Susan Kessler Barnard

By: Barnard, Susan Kessler.
Denver, CO : Outskirts Press, 2017Description: xi, 273 pages : 23 cm.ISBN: 9781478784425.Subject(s): INTELLECTUAL AND DEVELOPMENTAL DISABILITIES | CASE STUDIES | PARENTS | SIBLINGS | PERSONAL NARRATIVES | BIOGRAPHY
Contents:
Preface. - 1. Children with major speech problems. - 2. Children with Down syndrome. - 3. Children with epilepsy, seizures and strokes. - 4. Children with various forms of palsy. - 5. Children with encephalitis and meningitis. - 6. Children with Marfan syndrome. - 7. Kamier Syndrome. - 8. Fragile X syndrome. - 9. Children who don't fall into a specific category. - 10. Parents with two special needs children. - 11. Siblings. - 12. The 'kids" speak. - 13. Special education teachers. - 14. people who provide services for special needs people.
Summary: "Parents, family members, teachers and program managers share their experiences with children from birth to middle age. The children have speech problems, Down’s syndrome, epilepsy, strokes, palsy, encephalitis, meningitis or other developmental problems. Dreams is an unvarnished look at how parents and siblings coped... Talking anonymously, parents related their pains, frustrations and fears; they spoke honestly about their marriages and friends... Dreams is about hope. Many children whose doctors predicted they would be in an institution now live independently or semi-independently. Many work in the community or in a sheltered workshop, have a social life, go to camp, and travel. Some have married and have children of their own." - PUBLISHER'S WEBSITE
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Item type Current library Collection Call number Status Date due Barcode Item holds
Book IHC Library Main Collection 700 BAR (Browse shelf(Opens below)) Available W008671
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Preface. - 1. Children with major speech problems. - 2. Children with Down syndrome. - 3. Children with epilepsy, seizures and strokes. - 4. Children with various forms of palsy. - 5. Children with encephalitis and meningitis. - 6. Children with Marfan syndrome. - 7. Kamier Syndrome. - 8. Fragile X syndrome. - 9. Children who don't fall into a specific category. - 10. Parents with two special needs children. - 11. Siblings. - 12. The 'kids" speak. - 13. Special education teachers. - 14. people who provide services for special needs people.

"Parents, family members, teachers and program managers share their experiences with children from birth to middle age. The children have speech problems, Down’s syndrome, epilepsy, strokes, palsy, encephalitis, meningitis or other developmental problems. Dreams is an unvarnished look at how parents and siblings coped... Talking anonymously, parents related their pains, frustrations and fears; they spoke honestly about their marriages and friends... Dreams is about hope. Many children whose doctors predicted they would be in an institution now live independently or semi-independently. Many work in the community or in a sheltered workshop, have a social life, go to camp, and travel. Some have married and have children of their own." - PUBLISHER'S WEBSITE

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