'It's different, but it's the same' : perspectives of young adults with siblings with intellectual disabilities in residential care

By: Jacobs, Paula.
Contributor(s): MacMahon, Ken.
Series: British Journal of Learning Disabilities 45 (1) March 2017: 12-20. 2017Disc region: text file PDF rda.Content type: text Media type: computer Carrier type: online resource Subject(s): SEVERE PROFOUND AND MULTIPLE DISABILITIES | RESIDENTIAL CARE | SIBLINGS | YOUNG ADULTS | PERSONAL NARRATIVES | FUTURE PROSPECTS | FAMILY RELATIONSHIPS | AMBIVALENCEOnline resources: Read this Article Summary: Siblings often play significant roles in the lives of people with intellectual disabilities. This study aimed to give voice to young adults whose siblings have an intellectual disability and are in residential care. Emergent themes included family and sibling relationships and concerns for the future. However, ambivalence, in terms of conflicting feelings within participants themselves, was striking. Dissonances within narratives included identifying as 'one family' whilst living apart, experiencing guilt while being supportive of the residential placement, and emphasising the normality of the sibling experience whilst also feeling different and isolated.
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Siblings often play significant roles in the lives of people with intellectual disabilities. This study aimed to give voice to young adults whose siblings have an intellectual disability and are in residential care. Emergent themes included family and sibling relationships and concerns for the future. However, ambivalence, in terms of conflicting feelings within participants themselves, was striking. Dissonances within narratives included identifying as 'one family' whilst living apart, experiencing guilt while being supportive of the residential placement, and emphasising the normality of the sibling experience whilst also feeling different and isolated.

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