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“I love my sister, but sometimes I don't” : A qualitative study into the experiences of siblings of a child with profound intellectual and multiple disabilities

By: Luijkx, Jorien.
Contributor(s): van der Putten, Annette A. J | Vlaskamp, Carla.
Series: Journal of Intellectual & Developmental Disability 41 (4) December 2016: 279-288. 2016Subject(s): PROFOUND INTELLECTUAL AND MULTIPLE DISABILITIES | QUALITATIVE RESEARCH | QUALITY OF LIFE | SIBLINGS | FAMILY QUALITY OF LIFE | PHOTO ELICITATION INTERVIEWOnline resources: Click to read article online IHC Library Members Summary: Many previous family quality of life studies have relied on parental information for understanding if and how having a sibling with profound intellectual and multiple disabilities (PIMD) influences the sibling’s quality of life. In the current study, children had the opportunity to describe both positive and negative aspects of having a sibling with PIMD.
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Many previous family quality of life studies have relied on parental information for understanding if and how having a sibling with profound intellectual and multiple disabilities (PIMD) influences the sibling’s quality of life. In the current study, children had the opportunity to describe both positive and negative aspects of having a sibling with PIMD.

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