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How parents and physicians experience end-of-life decision-making for children with profound intellectual and multiple disabilities

By: Zaal-Schuller, I. H.
Contributor(s): Willems, D. L | Ewals, F. V. P. M | van Goudoever, J. B | de Vos, M. A.
Series: Research in Developmental Disabilities 59 December 2016: 283-293. 2016Subject(s): PROFOUND INTELLECTUAL AND MULTIPLE DISABILITIES | CHILDREN | END OF LIFE | DECISION MAKING | PARENTS | MEDICAL PRACTITIONER | EXPERIENCES | INTERVIEWS | END OF LIFE DECISIONS (EoLD)Online resources: Click to read article online IHC Library Members Summary: End-of-life decisions (EoLD) often concern children with profound intellectual and multiple disabilities (PIMD). Yet, little is known about how parents and physicians discuss and make these decisions. The objective of this research was to investigate the experiences of the parents and the involved physician during the end-of-life decision-making (EoLDM) process for children with PIMD.
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End-of-life decisions (EoLD) often concern children with profound intellectual and multiple disabilities (PIMD). Yet, little is known about how parents and physicians discuss and make these decisions. The objective of this research was to investigate the experiences of the parents and the involved physician during the end-of-life decision-making (EoLDM) process for children with PIMD.

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