How parents and physicians experience end-of-life decision-making for children with profound intellectual and multiple disabilities
By: Zaal-Schuller, I. H.
Contributor(s): Willems, D. L | Ewals, F. V. P. M | van Goudoever, J. B | de Vos, M. A.
Series: Research in Developmental Disabilities 59 December 2016: 283-293. 2016Disc region: text file PDF rda.Content type: text Media type: computer Carrier type: online resource Subject(s): PROFOUND INTELLECTUAL AND MULTIPLE DISABILITIES (PIMD) | CHILDREN | END OF LIFE | DECISION MAKING | PARENTS | MEDICAL PRACTITIONER | EXPERIENCES | INTERVIEWS | END OF LIFE DECISIONS (EoLD)Online resources: Read this Article Summary: End-of-life decisions (EoLD) often concern children with profound intellectual and multiple disabilities (PIMD). Yet, little is known about how parents and physicians discuss and make these decisions. The objective of this research was to investigate the experiences of the parents and the involved physician during the end-of-life decision-making (EoLDM) process for children with PIMD.Item type | Current library | Call number | Status | Date due | Barcode | Item holds | |
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Article Research | IHC Library | Article (Browse shelf(Opens below)) | Available (Article available on request) | W009385 |
End-of-life decisions (EoLD) often concern children with profound intellectual and multiple disabilities (PIMD). Yet, little is known about how parents and physicians discuss and make these decisions. The objective of this research was to investigate the experiences of the parents and the involved physician during the end-of-life decision-making (EoLDM) process for children with PIMD.
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