Parent and health care provider perspectives related to disclosure of autism spectrum disorder in pediatric emergency departments
By: Muskat, Barbara.
Contributor(s): Greenblatt, Andrea | Nicholas, David B | Ratnapalan, Savithiri | Cohen-Silver, Justine | Newton, Amanda S | Craig, William R | Kilmer, Christopher | Zwaigenbaum, Lonnie.
Series: Autism 20 (8) November 2016: 986-994. 2016Disc region: text file PDF rda.Content type: text Media type: computer Carrier type: online resource Subject(s): AUTISM
| CHILDREN | ADOLESCENTS | PARENTS | DISCLOSURE | RISK | BENEFITS | EMERGENCY DEPARTMENTS | QUALITATIVE RESEARCH | CANADAOnline resources: Read this Article Summary: Children and youth with autism spectrum disorder presenting in emergency departments face potential cognitive, sensory, and behavioral challenges, and it is crucial for providers to be aware of their unique needs. However, disclosure of a child's autism spectrum disorder can be complex for parental caregivers and is not well understood. This qualitative study utilized a grounded theory approach and analyzed data from 28 parents and 16 health care providers related to autism spectrum disorder disclosure within two Canadian pediatric emergency departments. Study results indicated that participants identified benefits and risks of disclosure. Encouraging understanding, expediting service, and preparing health care providers for working with children with autism spectrum disorder were identified as benefits of disclosure. Greater awareness of the disclosure experience and the development of resources and tools to support communication between parents and health care providers are also recommended.
| Item type | Current library | Call number | Status | Date due | Barcode | Item holds | |
|---|---|---|---|---|---|---|---|
| Article Research | IHC Library | Article (Browse shelf(Opens below)) | Available (Article available on request) | W009268 |
Children and youth with autism spectrum disorder presenting in emergency departments face potential cognitive, sensory, and behavioral challenges, and it is crucial for providers to be aware of their unique needs. However, disclosure of a child's autism spectrum disorder can be complex for parental caregivers and is not well understood. This qualitative study utilized a grounded theory approach and analyzed data from 28 parents and 16 health care providers related to autism spectrum disorder disclosure within two Canadian pediatric emergency departments. Study results indicated that participants identified benefits and risks of disclosure. Encouraging understanding, expediting service, and preparing health care providers for working with children with autism spectrum disorder were identified as benefits of disclosure. Greater awareness of the disclosure experience and the development of resources and tools to support communication between parents and health care providers are also recommended.
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