Some ethical and methodological issues in research with people with learning difficulties

By: Stalker, Kirsten.
Series: Disability & Society 13 (1) 1998: 5-19.Publisher: 1998Content type: text Media type: unmediated Carrier type: volume Subject(s): ETHICS | ISSUES | LEARNING DIFFICULTIES | METHODS | RESEARCHSummary: The research aimed to examine in detail the choicemaking process and to explore ways of involving people with learning difficulties both as respondents and as contributors to the study design. Dilemmas included how to gain informed consent from people with profound impairment, the risk of intrusion when conducting research in people's own homes, and the dangers of raising expectations of continuing friendship. The importance of accountability when analysing data and disseminating findings is highlighted.Pointers for future research were drawn up.
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The research aimed to examine in detail the choicemaking process and to explore ways of involving people with learning difficulties both as respondents and as contributors to the study design. Dilemmas included how to gain informed consent from people with profound impairment, the risk of intrusion when conducting research in people's own homes, and the dangers of raising expectations of continuing friendship. The importance of accountability when analysing data and disseminating findings is highlighted.Pointers for future research were drawn up.

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