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End-of-life decision-making for children with severe developmental disabilities : the parental perspective

By: Zaal-Schuller, I. H.
Contributor(s): de Vos, M. A | Ewals, F. V. P. M | van Goudoever, J. B | Willems, D. L.
Series: Research in Developmental Disabilities 49-50 February/March 2016: 235-246. 2016Subject(s): SEVERE PROFOUND AND MULTIPLE DISABILITIES | DEVELOPMENTAL DISABILITIES | CHILDREN | END OF LIFE | PARENTS | DECISION MAKING | LITERATURE REVIEWSOnline resources: Click to read article online IHC Library Members Summary: The objectives of this integrative review were to understand how parents of children with severe developmental disorders experience their involvement in end-of-life decision-making, how they prefer to be involved and what factors influence their decisions.
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The objectives of this integrative review were to understand how parents of children with severe developmental disorders experience their involvement in end-of-life decision-making, how they prefer to be involved and what factors influence their decisions.

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