Factors that underpin the delivery of effective decision-making support for people with cognitive disability : an exploration of ways to promote choice and control

By: Douglas, Jacinta.
Contributor(s): Bigby, Christine | Knox, Lucy | Browning, Michelle.
Series: Research and Practice in Intellectual and Developmental Disabilities 2 (1) 2015: 37-44. 2015Content type: text Media type: unmediated Carrier type: volume Subject(s): AUSTRALIAN NATIONAL DISABILITY INSURANCE SCHEME | INTELLECTUAL DISABILITY | SUPPORTED DECISION MAKING | SUPPORT SERVICES | SUPPORT STAFF | STAFF TRAINING | AUSTRALIASummary: Notes that over one million Australians have some form of cognitive impairment due to intellectual disability or acquired brain injury and require significant levels of support for decision-making. To date, the range and quality of support available has been poor, often tending toward undue paternalism, with deleterious consequences for the individual's sense of identity and quality of life. Describes four empirically based propositions that characterise effective decisionmaking support; orchestration by the primary supporter; commitment to person; support principles; and a repertoire of strategies that can be used flexibly depending on the type and context of particular decisions. These propositions are based on evidence from a series of qualitative studies conducted by the authors. Results of these studies enabled the identification of factors that underpin delivery of effective support and can be utilised to develop capacity-building education programs for people providing decision-making support to those with cognitive disability which will substantially improve the quality of support given.
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Notes that over one million Australians have some form of cognitive impairment due to intellectual disability or acquired brain injury and require significant levels of support for decision-making. To date, the range and quality of support available has been poor, often tending toward undue paternalism, with deleterious consequences for the individual's sense of identity and quality of life. Describes four empirically based propositions that characterise effective decisionmaking support; orchestration by the primary supporter; commitment to person; support principles; and a repertoire of strategies that can be used flexibly depending on the type and context of particular decisions. These propositions are based on evidence from a series of qualitative studies conducted by the authors. Results of these studies enabled the identification of factors that underpin delivery of effective support and can be utilised to develop capacity-building education programs for people providing decision-making support to those with cognitive disability which will substantially improve the quality of support given.

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