Aging together : sibling carers of adults with intellectual and developmental disabilities
By: Coyle, Caitlin E.
Contributor(s): Kramer, John | Mutchler, Jan E.
Series: Journal of Policy and Practice in Intellectual Disabilities 11 (4) 2014: 302-312. 2014Content type: text Media type: unmediated Carrier type: volume Subject(s): INTELLECTUAL DISABILITY
| PARENTS | SIBLINGS | SUPPORT SERVICES | CAREGIVERS | AGEINGSummary: Family care provision is the norm for adults with intellectual and developmental disabilities (I/DD), even as they and their support networks grow older. As families age together, the role of primary carer frequently transitions from the parent to a sibling, as aging parents die or become too frail to provide continued support. The purpose of this paper is to explore the transition in care from the perspective of a sibling who has replaced parents as the primary carer for an individual aging with I/DD. Findings from this study underscore the need to develop long-term services and supports as well as educational resources that accommodate this population of carers as they age together with their sibling with I/DD.
| Item type | Current library | Call number | Status | Date due | Barcode | Item holds | |
|---|---|---|---|---|---|---|---|
| Article Research | IHC Library | Article (Browse shelf(Opens below)) | Available (Article available on request) | W003664 |
Family care provision is the norm for adults with intellectual and developmental disabilities (I/DD), even as they and their support networks grow older. As families age together, the role of primary carer frequently transitions from the parent to a sibling, as aging parents die or become too frail to provide continued support. The purpose of this paper is to explore the transition in care from the perspective of a sibling who has replaced parents as the primary carer for an individual aging with I/DD. Findings from this study underscore the need to develop long-term services and supports as well as educational resources that accommodate this population of carers as they age together with their sibling with I/DD.
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