More than just a mammogram : breast cancer screening perspectives of relatives of women with intellectual disability

By: Greenwood, Nechama W.
Contributor(s): Dreyfus, Deborah | Wilkinson, Joanne.
Series: Intellectual and Developmental Disabilities 52 (6) 2014: 444-455. 2014Content type: text Media type: unmediated Carrier type: volume Subject(s): INTELLECTUAL DISABILITY | QUALITATIVE RESEARCH | SCREENING | BREAST CANCER | WOMEN | DECISION MAKING | FAMILIESSummary: Women with intellectual disability (ID) have similar rates of breast cancer as the general public, but higher breast cancer mortality and lower rates of regular screening mammography. Screening rates are lowest among women who live with their families. Though women with ID often make decisions in partnership with their relatives, we lack research related to family member perspectives on mammography. We conducted a qualitative study of family members of women with ID, with an interview guide focused on health care decision making and experiences, and breast cancer screening barriers, facilitators, and beliefs as related to their loved ones. Concludes that effective interventions to address disparities in mammography should focus on adults with ID and their families together, and incorporate the family context.
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Women with intellectual disability (ID) have similar rates of breast cancer as the general public, but higher breast cancer mortality and lower rates of regular screening mammography. Screening rates are lowest among women who live with their families. Though women with ID often make decisions in partnership with their relatives, we lack research related to family member perspectives on mammography. We conducted a qualitative study of family members of women with ID, with an interview guide focused on health care decision making and experiences, and breast cancer screening barriers, facilitators, and beliefs as related to their loved ones. Concludes that effective interventions to address disparities in mammography should focus on adults with ID and their families together, and incorporate the family context.

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