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Intellectual disability and dementia : research into practice

By: Watchman, Karen.
Contributor(s): Sinai, Amanda | Chan, Trevor | Strydom, Andre | Wilson, Lian Reese | Annus, Tiina | Zaman, Shahid H | Holland, Anthony J | Coppus, Antonia M W | Courtenay, Ken | Eady, Nicole | Jikinen, Nancy S | Kalsy-Lillico, Sunny | Blackman, Noelle | Thompson, David | Carling-Jenkins, Rachel | Bigby, Christine | Iacono, Teresa | Towers, Christine | Wilkinson, Heather | Tuffrey-Wijne, Irene | Dodd, Karen | Udell, Leslie | McCarron, Mary | McCallion, Philip | Reilly, Evelyn | Benbow, Susan Mary | Grizzell, Moni | Griffiths, Andrew.
Publisher: London Jessica Kingsley Publishers 2014Description: 334 p. : 23 cm.ISBN: 9781849054225.Subject(s): INTELLECTUAL DISABILITY | DEMENTIA | EPIDEMIOLOGY | DIAGNOSIS | MEDICATIONS | INTERVENTION | WELL BEING | FAMILY EXPERIENCES | FUTURE PLANNING | STAFF TRAINING | SUPPORT SERVICES | SERVICE DEVELOPMENT | OUTCOMES
Contents:
Foreword by Diana Kerr Introduction. Part I: The Association Between Intellectual Disability and Dementia: What Do We Know? 1. The Epidemiology of Dementia in People with Intellectual Disabilities / Amanda Sinai, Trevor Chan, Andrew Strydom 2. Understanding the Process: Links Between Down's Syndrome and Dementia / Liam Reese Wilson, Tiina Annus, Shahid Zaman, Anthony J Holland 3. The Outpatient Clinic for Adults with Down's Syndrome: A Model to Diagnose Dementia / Antonia Coppus 4. Medication Treatment of Dementia in People with Intellectual Disabilities / Ken Courtenay, Nicole Eady 5. Non-Pharmacological Interventions / Nancy Jokinen 6. Living Life with Dementia / Sunny Kalsy-Lillico Part II: Experiences of Dementia in People with Intellectual Disabilities: How Do We Know? 7. The Perspective of People with Intellectual Disabilities / Noelle Blackman, David Thompson 8. Towards Understanding Individual Experiences of People Ageing with Down's Syndrome and Dementia / Karen Watchman 9. Family Experiences of Supporting a Person with Down's Syndrome and Dementia in Australia / Rachel Carling-Jenkins, Christine Bigby, Teresa Iacono 10. Planning Ahead: Supporting Families to Shape the Future After a Diagnosis of Dementia / Christine Towers, Heather Wilkinson Part III: Service Planning: What Are We Going to Do? 11. Sharing the Diagnosis of Dementia: Breaking Bad News to People with an Intellectual Disability / Irene Tuffrey-Wijne, Karen Watchman, 12. Staff Knowledge and Training / Karen Dodd 13. Belief in a Place Called Home: Reflections on Twenty Years of Dementia Specific Service Provision / Leslie Udell 14. Responding to the Challenges of Service Development to Address Dementia Needs for People with an Intellectual Disability and their Caregivers / Mary McCarron, Philip McCallion, Evelyn Reilly, Niamh Mulryan 15. Intellectual Disability and Dementia Services: Better Together or Apart? Susan Mary Benbow, Moni Grizzell, Andrew Griffiths 16. Measuring Outcomes for Services and Individuals / Karen Dodd List of Contributors Index
Summary: "Presenting the most up-to-date information available about dementia and intellectual disabilities, this book brings together the latest international research and evidence-based practice, and describes clearly the relevance and implications for support and services. Internationally renowned experts from the UK, Ireland, the USA, Canada, Australia and the Netherlands discuss good practice and the way forward in relation to assessment, diagnosis, interventions, staff knowledge and training, care pathways, service design, measuring outcomes and the experiences of individuals, families and carers. The wealth of information offered will inform support and services throughout the whole course of dementia, from diagnosis to end of life. Particular emphasis is placed on how intellectual disability and dementia services can work collaboratively to offer more effective, joined up support. Practitioners, managers and commissioners will find this to be an informative resource for developing person-centred provision for people with intellectual disabilities and dementia and their families. It will also be a key text for academics and students who wish to be up-to-date with the latest research and practice developments in this field." - PUBLISHER'S WEBSITE
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Item type Current library Collection Call number Status Date due Barcode Item holds
Book IHC Library Main Collection 780.1 WAT (Browse shelf(Opens below)) Available W004698
Total holds: 0

Donated to the Library by The Freemasons Charity

Foreword by Diana Kerr
Introduction. Part I: The Association Between Intellectual Disability and Dementia: What Do We Know?
1. The Epidemiology of Dementia in People with Intellectual Disabilities / Amanda Sinai, Trevor Chan, Andrew Strydom
2. Understanding the Process: Links Between Down's Syndrome and Dementia / Liam Reese Wilson, Tiina Annus, Shahid Zaman, Anthony J Holland
3. The Outpatient Clinic for Adults with Down's Syndrome: A Model to Diagnose Dementia / Antonia Coppus
4. Medication Treatment of Dementia in People with Intellectual Disabilities / Ken Courtenay, Nicole Eady
5. Non-Pharmacological Interventions / Nancy Jokinen
6. Living Life with Dementia / Sunny Kalsy-Lillico Part II: Experiences of Dementia in People with Intellectual Disabilities: How Do We Know?
7. The Perspective of People with Intellectual Disabilities / Noelle Blackman, David Thompson
8. Towards Understanding Individual Experiences of People Ageing with Down's Syndrome and Dementia / Karen Watchman
9. Family Experiences of Supporting a Person with Down's Syndrome and Dementia in Australia / Rachel Carling-Jenkins, Christine Bigby, Teresa Iacono
10. Planning Ahead: Supporting Families to Shape the Future After a Diagnosis of Dementia / Christine Towers, Heather Wilkinson
Part III: Service Planning: What Are We Going to Do?
11. Sharing the Diagnosis of Dementia: Breaking Bad News to People with an Intellectual Disability / Irene Tuffrey-Wijne, Karen Watchman,
12. Staff Knowledge and Training / Karen Dodd
13. Belief in a Place Called Home: Reflections on Twenty Years of Dementia Specific Service Provision / Leslie Udell
14. Responding to the Challenges of Service Development to Address Dementia Needs for People with an Intellectual Disability and their Caregivers / Mary McCarron, Philip McCallion, Evelyn Reilly, Niamh Mulryan
15. Intellectual Disability and Dementia Services: Better Together or Apart? Susan Mary Benbow, Moni Grizzell, Andrew Griffiths
16. Measuring Outcomes for Services and Individuals / Karen Dodd
List of Contributors
Index

Copyright Permission: Yes

"Presenting the most up-to-date information available about dementia and intellectual disabilities, this book brings together the latest international research and evidence-based practice, and describes clearly the relevance and implications for support and services. Internationally renowned experts from the UK, Ireland, the USA, Canada, Australia and the Netherlands discuss good practice and the way forward in relation to assessment, diagnosis, interventions, staff knowledge and training, care pathways, service design, measuring outcomes and the experiences of individuals, families and carers. The wealth of information offered will inform support and services throughout the whole course of dementia, from diagnosis to end of life. Particular emphasis is placed on how intellectual disability and dementia services can work collaboratively to offer more effective, joined up support. Practitioners, managers and commissioners will find this to be an informative resource for developing person-centred provision for people with intellectual disabilities and dementia and their families. It will also be a key text for academics and students who wish to be up-to-date with the latest research and practice developments in this field." - PUBLISHER'S WEBSITE

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