Personalisation and learning disabilities : a review of evidence on advocacy and its practice for people with learning disabilities and high support needs

Executive summary
1 Introduction
1.1 Method of the review
1.2 Definitions and terminology
2 Research review
2.1 Development of advocacy and self-advocacy for people with high
support needs
2.2 Policy and legislation
2.3 Advocacy practice for high support needs
2.4 Quality and development of advocacy
2.5 Outcomes
2.6 Key needs and issues for people with high support needs related to
self-directed support and advocacy
2.7 Indications from the research review for content of the practice survey
3 Practice survey
3.1 Introduction
3.2 Models and tools for advocacy and support that enable people to be
included in planning and shaping their social care
3.3 Examples where person-centred approaches to planning have shaped
services or support
3.4 How involving people can change service planning, development or review
3.5 Skills and resources needed to support self-advocacy
3.6 Monitoring and evaluation
3.7 Additional issues generated by practice sites
4 Directions for development
4.1 Service culture
4.2 Building the evidence base for advocacy for people with learning
disabilities and high support needs
4.3 Developing services in line with the evidence base
4.4 Advocacy workforce strategy
4.5 Commissioning
5 References
Appendices
1: Membership of the Advisory Group
2: Pen portraits of the five practice survey sites
3: Resources suggested by the practice survey sites and others
involved in this review
4: Questions to be answered by the five practice survey sites
5: Establishing a self-advocacy group for people with high
support needs
6: Sensory monitoring sheet
7: Course guide

"This review follows on from SCIE Position Paper 6 and sets out to identify good practice in advocacy for people with a learning disability and high support needs, and to support thinking about how this area can be improved. It is about the role of people who are formal or informal advocates, about creative ways of working, the difference it can make to a person's life and developing social care services." - INTRODUCTION