Using a parent survey to advance knowledge about the nature and consequences of fragile X syndrome

By: Bailey, Donald B.
Contributor(s): Raspa, Melissa | Olmsted, Murrey G.
Series: American Journal on Intellectual and Developmental Disabilities 115 (6) 2010: 447-460.Publisher: 2010Content type: text Media type: unmediated Carrier type: volume Subject(s): FRAGILE X SYNDROME | SURVEYS | PARENTS | KNOWLEDGESummary: Discusses the potential of surveys in understanding a disabling condition and delineates the characteristics of successful survey research. Synthesizes major findings from the National Fragile X Survey. Claims the survey has provided new information about the nature and consequences of fragile X syndrome in a cost-effective fashion, suggesting that survey methodology has a useful place in creating new knowledge about intellectual and developmental disabilities.
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Discusses the potential of surveys in understanding a disabling condition and delineates the characteristics of successful survey research. Synthesizes major findings from the National Fragile X Survey. Claims the survey has provided new information about the nature and consequences of fragile X syndrome in a cost-effective fashion, suggesting that survey methodology has a useful place in creating new knowledge about intellectual and developmental disabilities.

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