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Dear Megan : letters on life, love and fragile X

By: Busby, Mary Beth.
Contributor(s): Massey, Megan.
Publisher: Sterling, VA Capital Books 2006Description: xxi, 250 p. : ill. ; 23 cm.ISBN: 978193310223.Subject(s): FRAGILE X SYNDROME | FAMILY EXPERIENCES | FAMILY INTERACTION | CORRESPONDENCE
Contents:
Chapter 1 Welcome to FRAXA Chapter 2 What the Blind Palm Reader Saw Chapter 3 Dropping Bread Crumbs Chapter 4 Diagnosis and Dealing Chapter 5 FRAXA's Founding Chapter 6 Lobbying Chapter 7 How Sweet It Is Chapter 8 To the White House Chapter 9 Washington Life Chapter 10 Robert's Birthday: Trauma Time Chapter 11 All that Autizzing Chapter 12 Guilt Trips and Valentines Chapter 13 Family History Chapter 14 So, What Is "Least Restrictive" Really? Chapter 15 Let's Party! Chapter 16 Your Tax Dollars at Work Chapter 17 Guardian Angels and Messenger Angels Chapter 18 Necessarily Delayed Gratification Chapter 19 Mother's Day Chapter 20 What I Woulda, Coulda, Shoulda Said Chapter 21 Residential Placement: The World's Most Agonizing Decision Chapter 22 Right and Wrong Behavior Chapter 23 What's in a Name Chapter 24 Kelly's Good News Chapter 25 Riveting Research Chapter 26 Cooking as Therapy Chapter 27 Jack Massey's Transition to Boarding School Chapter 28 Mary Beth's Excellent Adventure Dream Chapter 29 Marriage and Divorce Chapter 30 January Blahs and Blues
Summary: "An important and highly original book on fragile X. Written as letters between two mothers [of children with fragile X this] is highly readable, informative, ground-breaking and unforgettable." - BOOK JACKET
List(s) this item appears in: Fragile x May 2017 | Cerebral palsy in adults Dec 2018
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    average rating: 3.0 (2 votes)
Item type Current location Call number Status Date due Barcode Item holds
Book IHC Library
780.22 BUS (Browse shelf) Available W000399
Total holds: 0

"An important and highly original book on fragile X. Written as letters between two mothers [of children with fragile X this] is highly readable, informative, ground-breaking and unforgettable." - BOOK JACKET

Chapter 1 Welcome to FRAXA
Chapter 2 What the Blind Palm Reader Saw
Chapter 3 Dropping Bread Crumbs
Chapter 4 Diagnosis and Dealing
Chapter 5 FRAXA's Founding
Chapter 6 Lobbying
Chapter 7 How Sweet It Is
Chapter 8 To the White House
Chapter 9 Washington Life
Chapter 10 Robert's Birthday: Trauma Time
Chapter 11 All that Autizzing
Chapter 12 Guilt Trips and Valentines
Chapter 13 Family History
Chapter 14 So, What Is "Least Restrictive" Really?
Chapter 15 Let's Party!
Chapter 16 Your Tax Dollars at Work
Chapter 17 Guardian Angels and Messenger Angels
Chapter 18 Necessarily Delayed Gratification
Chapter 19 Mother's Day
Chapter 20 What I Woulda, Coulda, Shoulda Said
Chapter 21 Residential Placement: The World's Most Agonizing Decision
Chapter 22 Right and Wrong Behavior
Chapter 23 What's in a Name
Chapter 24 Kelly's Good News
Chapter 25 Riveting Research
Chapter 26 Cooking as Therapy
Chapter 27 Jack Massey's Transition to Boarding School
Chapter 28 Mary Beth's Excellent Adventure Dream
Chapter 29 Marriage and Divorce
Chapter 30 January Blahs and Blues

Patron comment on

I wouldn't recommend this book to someone who's child was newly diagnosed with fragile x but futher down the track it was interesting to read. Still hearttbreaking to think/see what the future will be when you have children with this condition.

Patron comment on

As a new entrant teacher it gave me a chance to understand more fully what being the mother of a fragile-x child means

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