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Fragile X : A to Z : a guide for families

By: Langan, Mary Beth.

Publisher: Newburyport, MA FRAXA 2006Edition: 2nd ed.Description: 145 p. : ill. ; Electronic resource.Subject(s): FRAGILE X SYNDROME

| FAMILIES

| PERSONAL NARRATIVES

Online resources: Click here to access online Summary: "This guide is intended to help families cope with daily challenges of living with a child who has a disability, specifically Fragile X Syndrome. Many of the topics discussed may pertain to parents with children affected by other disabilities and with typically developing children. Most of the anecdotes were posted to the Fragile X Listserv and are reprinted here with permission of the authors." - INTRODUCTION

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Average rating: 4.0 (1 votes)

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Item type	Current library	Call number	Status	Date due	Barcode	Item holds
Electronic Resource	IHC Library		Not for loan

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Previous	A review of the research literature on supported employment : a report for the cross-government learning disability employment strategy team	Valuing people now : a new three-year strategy for people with learning disabilities : making it happen for everyone	To have an 'ordinary' life = Kia whai oranga 'noa' : background papers to inform the National Advisory Committee on Health and Disability : information about the lives of adults with an intellectual disability in New Zealand	Fragile X : A to Z : a guide for families	Reflecting on social roles : identifying opportunities to support personal freedom & social integration	No one knows : report and final recommendations. Prisoners' voices : experiences of the criminal justice system by prisoners with learning disabilities and difficulties	Making us count : identifying and improving mental health support for young people with learning disabilities : a research report	Next

"This guide is intended to help families cope with daily challenges of living with a child who has a disability, specifically Fragile X Syndrome. Many of the topics discussed may pertain to parents with children affected by other disabilities and with typically developing children. Most of the anecdotes were posted to the Fragile X Listserv and are reprinted here with permission of the authors." - INTRODUCTION

Patron comment on

As a new entrant teacher of a fragile-x child there were a number of good ideas in here that could be used in the classroom

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