Perceived quality of life in mothers of children with fragile X syndrome

By: Wheeler, Anne C.
Contributor(s): Skinner, Debra G | Bailey, Donald B.
Series: American Journal on Mental Retardation 113 (3) 2008: 159-177.Publisher: 2008Content type: text Media type: unmediated Carrier type: volume Subject(s): CHILDREN | MOTHERS | FRAGILE X SYNDROME | QUALITY OF LIFE | STRESS | PERCEPTIONSSummary: Uses a mixed method approach to explore quality of life of 101 mothers of children with fragile X syndrome. Finds that these mothers do not, as a whole, report a lower quality of life than does the average woman. Significant predictors of quality of life were trait hope and parenting stress. The most positive factor was being a mother, despite the challenges and stressors of parenting a child with fragile X.
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Uses a mixed method approach to explore quality of life of 101 mothers of children with fragile X syndrome. Finds that these mothers do not, as a whole, report a lower quality of life than does the average woman. Significant predictors of quality of life were trait hope and parenting stress. The most positive factor was being a mother, despite the challenges and stressors of parenting a child with fragile X.

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