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Cerebral palsy : a complete guide for caregiving

By: Miller, Freeman.
Contributor(s): Bachrach, Steven J | Boos, Marilyn L | et al.
Publisher: Baltimore, MD Johns Hopkins University Press 2006Edition: 2nd ed.Description: xiv, 496 p. : ill. ; 26 cm.ISBN: 0801883555.Subject(s): CHILDREN | CEREBRAL PALSY | CAREGIVERS | SUPPORT SERVICES | UNITED STATES OF AMERICA
Contents:
pt. 1. Cerebral palsy handbook What is cerebral palsy? An overview of early child development Medical problems associated with cerebral palsy Intellectual, psychological, and social development Hemiplegia Diplegia Quadriplegia The adult with cerebral palsy How the health care system works Financing care for the child with cerebral palsy Navigating the educational system Being an advocate for your child : using the legal system pt. 2. Caregiving techniques Taking care of yourself when you care for others Protecting the caregivers' back : basic body mechanics Making things easier for you and your child : home modifications Choosing appropriate seating Choosing and using car seats About wheelchair maintenance Pressure management awareness Choosing a stander About walkers and gait trainers About braces Choosing the correct shoes Increasing independence with service dogs Managing the system Working with a case manager Letters of medical necessity Occupations for adults with cerebral palsy About hospitalization Keeping medical history records Life planning process About casts Using nutritional boosters Managing tube feedings Oral hygiene : providing mouth and teeth care Toilet training your child Giving an enema Giving rectal medications or suppositories Suctioning techniques pt. 3. Cerebral palsy encyclopedia From Achilles tendon lengthening to vocational rehabilitation Resources : support groups, foundations, and government agencies Recommended reading and toys, and where to go to chat with others
Summary: "Thoroughly updated and revised with the latest medical advances, the second edition of this authoritative resource provides parents and families with vital information to help them cope with uncertainty. Covers detailed descriptions of specific patterns of involvement, explanations of the medical and psychosocial implications of CP, practical advice about caregiving and an extensive, alphabetically arranged encyclopedia." - BOOK JACKETReview: The information in this book represents the current thinking of professionals who specialise in the medical, psychological, educational and legal aspects of caring for children who have cerebral palsy. The authors state “our goal in writing this book is to help those who care for a child with cerebral palsy understand the child’s needs and how these needs can best be met. In helping the caregivers, of course, our ultimate goal is to help the child.” The first section offers an overview of the condition, a detailed description of specific patterns of involvement (hemiplegia, diplegia and quadriplegia), the challenges adults with CP face, parent advocacy and health, financial and educational issues (US). The second section is devoted to caregiving techniques; inter alia, protecting the caregivers back, home modifications, nutrition, tube feeding, braces, walkers, wheelchairs, standers, toilet training, suctioning techniques, pressure management, hospitalisation. Part three is a cerebral palsy encyclopaedia. This is alphabetically arranged and addresses the many complexities and uncertainties related to a CP diagnosis. At the same time it provides the information caregivers, relatives and professionals need from Achilles tendon lengthening to varus. Also lists support groups, foundations and government agencies as well as recommended reading and toys and where to go to chat with others.
List(s) this item appears in: Cerebral palsy in adults Dec 2018
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    average rating: 4.0 (1 votes)
Item type Current location Call number Status Date due Barcode Item holds
Book IHC Library
750 MIL (Browse shelf) Available W002456
Total holds: 0

pt. 1. Cerebral palsy handbook
What is cerebral palsy?
An overview of early child development
Medical problems associated with cerebral palsy
Intellectual, psychological, and social development
Hemiplegia
Diplegia
Quadriplegia
The adult with cerebral palsy
How the health care system works
Financing care for the child with cerebral palsy
Navigating the educational system
Being an advocate for your child : using the legal system
pt. 2. Caregiving techniques
Taking care of yourself when you care for others
Protecting the caregivers' back : basic body mechanics
Making things easier for you and your child : home modifications
Choosing appropriate seating
Choosing and using car seats
About wheelchair maintenance
Pressure management awareness
Choosing a stander
About walkers and gait trainers
About braces
Choosing the correct shoes
Increasing independence with service dogs
Managing the system
Working with a case manager
Letters of medical necessity
Occupations for adults with cerebral palsy
About hospitalization
Keeping medical history records
Life planning process
About casts
Using nutritional boosters
Managing tube feedings
Oral hygiene : providing mouth and teeth care
Toilet training your child
Giving an enema
Giving rectal medications or suppositories
Suctioning techniques
pt. 3. Cerebral palsy encyclopedia
From Achilles tendon lengthening to vocational rehabilitation
Resources : support groups, foundations, and government agencies
Recommended reading and toys, and where to go to chat with others

"Thoroughly updated and revised with the latest medical advances, the second edition of this authoritative resource provides parents and families with vital information to help them cope with uncertainty. Covers detailed descriptions of specific patterns of involvement, explanations of the medical and psychosocial implications of CP, practical advice about caregiving and an extensive, alphabetically arranged encyclopedia." - BOOK JACKET

The information in this book represents the current thinking of professionals who specialise in the medical, psychological, educational and legal aspects of caring for children who have cerebral palsy. The authors state “our goal in writing this book is to help those who care for a child with cerebral palsy understand the child’s needs and how these needs can best be met. In helping the caregivers, of course, our ultimate goal is to help the child.”
The first section offers an overview of the condition, a detailed description of specific patterns of involvement (hemiplegia, diplegia and quadriplegia), the challenges adults with CP face, parent advocacy and health, financial and educational issues (US).
The second section is devoted to caregiving techniques; inter alia, protecting the caregivers back, home modifications, nutrition, tube feeding, braces, walkers, wheelchairs, standers, toilet training, suctioning techniques, pressure management, hospitalisation.
Part three is a cerebral palsy encyclopaedia. This is alphabetically arranged and addresses the many complexities and uncertainties related to a CP diagnosis. At the same time it provides the information caregivers, relatives and professionals need from Achilles tendon lengthening to varus. Also lists support groups, foundations and government agencies as well as recommended reading and toys and where to go to chat with others.

Patron comment on

Very good book

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