Cerebral palsy : a complete guide for caregiving
By: Miller, Freeman.
Contributor(s): Bachrach, Steven J | Boos, Marilyn L | et al.
Publisher: Baltimore, MD Johns Hopkins University Press 2006Edition: 2nd ed.Description: xiv, 496 p. : ill. ; 26 cm.ISBN: 0801883555.Subject(s): CHILDREN | CEREBRAL PALSY | CAREGIVERS | SUPPORT SERVICES | UNITED STATES OF AMERICAItem type | Current library | Call number | Status | Date due | Barcode | Item holds | |
---|---|---|---|---|---|---|---|
Book | IHC Library | 750 MIL (Browse shelf(Opens below)) | Available | W002456 |
pt. 1. Cerebral palsy handbook
What is cerebral palsy?
An overview of early child development
Medical problems associated with cerebral palsy
Intellectual, psychological, and social development
Hemiplegia
Diplegia
Quadriplegia
The adult with cerebral palsy
How the health care system works
Financing care for the child with cerebral palsy
Navigating the educational system
Being an advocate for your child : using the legal system
pt. 2. Caregiving techniques
Taking care of yourself when you care for others
Protecting the caregivers' back : basic body mechanics
Making things easier for you and your child : home modifications
Choosing appropriate seating
Choosing and using car seats
About wheelchair maintenance
Pressure management awareness
Choosing a stander
About walkers and gait trainers
About braces
Choosing the correct shoes
Increasing independence with service dogs
Managing the system
Working with a case manager
Letters of medical necessity
Occupations for adults with cerebral palsy
About hospitalization
Keeping medical history records
Life planning process
About casts
Using nutritional boosters
Managing tube feedings
Oral hygiene : providing mouth and teeth care
Toilet training your child
Giving an enema
Giving rectal medications or suppositories
Suctioning techniques
pt. 3. Cerebral palsy encyclopedia
From Achilles tendon lengthening to vocational rehabilitation
Resources : support groups, foundations, and government agencies
Recommended reading and toys, and where to go to chat with others
"Thoroughly updated and revised with the latest medical advances, the second edition of this authoritative resource provides parents and families with vital information to help them cope with uncertainty. Covers detailed descriptions of specific patterns of involvement, explanations of the medical and psychosocial implications of CP, practical advice about caregiving and an extensive, alphabetically arranged encyclopedia." - BOOK JACKET
The information in this book represents the current thinking of professionals who specialise in the medical, psychological, educational and legal aspects of caring for children who have cerebral palsy. The authors state “our goal in writing this book is to help those who care for a child with cerebral palsy understand the child’s needs and how these needs can best be met. In helping the caregivers, of course, our ultimate goal is to help the child.”
The first section offers an overview of the condition, a detailed description of specific patterns of involvement (hemiplegia, diplegia and quadriplegia), the challenges adults with CP face, parent advocacy and health, financial and educational issues (US).
The second section is devoted to caregiving techniques; inter alia, protecting the caregivers back, home modifications, nutrition, tube feeding, braces, walkers, wheelchairs, standers, toilet training, suctioning techniques, pressure management, hospitalisation.
Part three is a cerebral palsy encyclopaedia. This is alphabetically arranged and addresses the many complexities and uncertainties related to a CP diagnosis. At the same time it provides the information caregivers, relatives and professionals need from Achilles tendon lengthening to varus. Also lists support groups, foundations and government agencies as well as recommended reading and toys and where to go to chat with others.
Patron comment on
Very good book