"I love my sister, but sometimes I don't" : A qualitative study into the experiences of siblings of a child with profound intellectual and multiple disabilities

Luijkx, Jorien

"I love my sister, but sometimes I don't" : A qualitative study into the experiences of siblings of a child with profound intellectual and multiple disabilities - Journal of Intellectual & Developmental Disability 41 (4) December 2016: 279-288 1366-8250 .

Many previous family quality of life studies have relied on parental information for understanding if and how having a sibling with profound intellectual and multiple disabilities (PIMD) influences the sibling's quality of life. In the current study, children had the opportunity to describe both positive and negative aspects of having a sibling with PIMD.


PROFOUND INTELLECTUAL AND MULTIPLE DISABILITIES (PIMD)
QUALITATIVE RESEARCH
QUALITY OF LIFE
SIBLINGS
FAMILY QUALITY OF LIFE

PHOTO ELICITATION INTERVIEW

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